Sasha

LIVE DAILY ON PUMPFUN Sasha, has a rare genetic condition that causes childhood dementia. Every day it takes more of her words, her abilities and her independence. We are watching time slip away from her. We have a personalised genetic therapy – a medicine designed just for her that could give her a future.

It is built and waiting. The only thing standing between Sasha and treatment is completing the final safety testing. If we cannot raise the money in time, she will grow into adulthood without the chance to live the life she deserves. There may not be another opportunity after this.

This coin exists for one reason only. To fund that safety work and give Sasha and children with rare neurological diseases a chance at a future. If you’ve ever wanted to be part of something that truly matters, please consider standing with us.